You might ask yourself, "How did I get here?"

I’ve always been low energy. However, in the last two years my energy level dropped to where I couldn’t make it through the day without a nap….despite the fact that my PCP put me on testosterone replacement. It generally helped especially with aches and pains, but my energy level continued to be very low. OK, so I’m getting old, but I’m still in my 50’s and shouldn’t feel like I’m in my 80’s. I also experienced some sporadic episodes of what my PCP thought were panic attacks. I’d wake up in the middle of the night with a racing heart. Strangely, I would also experience urgent bowel movement in conjunction with the panic attack. Normally, I am quite the opposite. So I took an antidepressant when offered. At least I didn’t linger on any of the symptoms and was able to move on. These occurred relatively infrequently....but left me drained. Finally, my energy level continued to remain low. Then I had a “panic attack”…took an additional dose of the antidepressant and it didn’t ease the symptoms in the least. I went to see an endocrinologist who listened to me, asked me about family history (I have two sisters who had thyroids removed). He felt my neck and did an ultrasound and found two nodules on the right lobe, one of which was over 2cm by his estimate. So, next I had a FNA biopsy. The results came back benign on the smaller nodule, but “atypical” on the larger nodule. This did not ease any concerns that I had because the cytology (cellular analysis/pathology) report had all the buzz words used to describe cancer. Given my family history and my symptoms, my gut was telling me to pursue this. So a second biopsy was conducted with a sample sent for genetic testing. Cytology again was “atypical”. However the genetic test said it was 90% certain there were none of 18 gene mutations which they can identify. Still didn’t ease my fear. Personally, I think there is a lot of room for both sampling error and lab error. Genetic testing might be more effective in thyroid cancer if you are talking about Medullary Thyroid Cancer. My endocrinologist recommended that we “wait and see”. He claimed that there was less than a 10% chance of cancer (based on genetic testing). He also didn’t seem concerned about “atypical” cytology results...or my symptoms. I told him that I was still concerned and wanted to discuss removal. Next, I went to see a surgeon who does only thyroid and endocrine system cancer surgery. She said that I could get the thyroid removed, but it would be based on the “atypical” biopsies … not any symptoms that I thought I was having (My read: You are old or nuts or both.) I opted for a lobectomy. She indicated that approximately 20% of these similar situations are cancerous. Well, lucky me, I hit the lottery. She called me and we scheduled a surgery for the following Wednesday to get the rest out. As I write this I am waiting to hear from the oncologist. I think I breathe easier at night (literally). I am a bit weak, but more than that I am a bit “foggy” now. I got a little “Dude, where’s my car” going on. Assume this is due to no thyroid and no hormone. Lessons learned: Just because a disease strikes mostly women, does not mean men can’t get it. Get educated & be your own advocate. Pay attention to family history. Get a second opinion when necessary. Pay attention to your body.
Faithsmom likes this post.
Bryan threw a punch at your cancer.
3 people sent you a prayer.
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Well said! I wish you the best and keep us posted! I love the " I got a little “Dude, where’s my car” going on." : )
 Thanks Kerry. It's hard to get used to feeling like this, because I keep expecting the fogginess to pass.
I'm with ya! One thing I have learned is that you have to do a lot of your own research and you have to make drs listen. It's difficult sometimes when you're not feeling well to persist, but it's worth it. God bless. Keep us updated.
 Thank you Mary for the encouragement! I am trying to read "The Thyroid Solution" by Ridha Arem. Luckily I went to an endocrinologist...who actually felt my neck and did the ultrasound. I should know more next week.
Thank you Sterling. Low thyroid can make you feel & act like you'really on heaby drugs. Hope they get your legels balanced quickly.
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Vital Info

Posts

November 12, 2012

Missouri

Cancer Info

Thyroid Cancer

October 31, 2012

Stage 1

No

Thyroidectomy

No energy.

Learning to be patient.

Mostly hypothyroid type symptoms.

Stats

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